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National Center on Physical Activity and Disability

 

The University of Illinois at Chicago (UIC), through its Department of Disability and Human Development, and in collaboration with several major organizations in physical activity, rehabilitation and disability, operates the National Center on Physical Activity and Disability (NCPAD). The primary focus of NCPAD is to improve the health, wellness, and quality of life of people with disabilities by promoting and facilitating increased participation in physical activity and recreation. NCPAD is a proven and effective online health promotion resource center supplemented by personalized services fully accessible to people with disabilities.

 

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RERC on Interactive Exercise Technologies and Exercise Physiology for People with Disabilities

 

The National Institute on Disability and Rehabilitation Research (NIDRR) has funded the Rehabilitation Engineering Research Center on Recreational Technology and Exercise Physiology Benefiting Persons with Disabilities (RecTech). RecTech's researchers develop technologies that can help promote more active, healthy lifestyles among people with disabilities as one approach to addressing this important public health problem.

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Inclusive Fitness Coalition (IFC)

 

The Inclusive Fitness Coalition (IFC) was formed to address policy, environmental, and societal issues associated with the lack of inclusion and access to physical activity among people with disabilities. It is estimated that 50 million people have some type of disability. This significant portion of the population faces some of the greatest health risks associated with sedentary lifestyles. The Inclusive Fitness Coalition developed out of the need to address these health issues and create a unified effort to increase access to and participation in physical activity for youths, adults and seniors with physical, cognitive and sensory disabilities.

 

 

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Community Health Inclusion Index

 

The instruments currently being used to measure physical activity and healthy eating resources at the community level have not been designed to capture the needs of people with disabilities. As a result, the strategies being formulated to build healthy communities do not represent the needs of people with disabilities. 

 

 

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Disability Rehabilitation Research Project II

 

The Disability Rehabilitation Research Project (DRRP) titled UIC Obesity Research Project on Prevalence, Adaptations and Knowledge Translation In Youth and Young Adults with Disabilities from Diverse Race/Ethnic Backgrounds is a 5-year center grant funded by the National Institute on Disability and Rehabilitation Research (NIDRR), James H. Rimmer, Principal Investigator.

 

 

LHIDS

 

RRTC: Longitudinal Health & Intellectual Disability Study (LHIDS)

 

Exploring the effects of healthy choices for individuals with intellectual disability

 

The Longitudinal Health & Intellectual Disability Study (LHIDS) is a 5-year research project exploring health behaviors and outcomes for adults with intellectual disabilities (ID). Funded by the National Institute on Disability and Rehabilitation Research (NIDRR), LHIDS will consist of two studies, one involving a longitudinal cohort of 1700-2000 adults with ID over a five year period to establish the relationship between health behaviors and health outcomes. The second study will test a strength and balance intervention aimed at preventing accidental falls for persons with ID via a randomized control trial. Together, the LHIDS studies will generate important knowledge regarding the health of adults with ID. Research findings can serve to better inform consumers and their families, health care professionals, and disability policymakers in regard to health promotion for persons with ID. 

 

 

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Personal Health Record for Adults with Intellectual Disabilities (PHR-ID)

 

Adults with intellectual disabilities (ID) face enormous obstacles in receiving health care and navigating the health care system.  The resultant poor continuity of care can lead to greater morbidity in persons with ID.  Given their complex health needs and the extreme fragmentation of care faced by individuals with ID, additional intervention is necessary to improve continuity of care and the sharing of health information.  Electronic, integrated Personal Health Records (PHRs) hold promise in helping reshape healthcare by sharing health data with their caregivers and providers in an automated, patient-centered fashion. However, there are currently no established Internet-based PHRs available that meet the needs of this vulnerable population.

 

To address this problem, this study has refined and tested an existing PHR that will specifically meet the needs of persons with ID.  The PHR will build upon ongoing work by the Special Olympics International in conjunction with HealthOne Global, known as the Personal Health Record for Adults with Intellectual Disabilities, or PHR-ID.  The study team includes the developers of PHR-ID, quality improvement and medical informatics experts, and health services and intervention researchers. 

 

 

ILDHP

Illinois Disability and Health Project

 

The Illinois Disability and Health Program is a collaboration initiated jointly by the Illinois Department of Public Health and the University of Illinois at Chicago. The goal of the program is to reduce and prevent secondary health conditions, especially chronic health problems, that are related to or exacerbated by primary disability, among Illinois citizens with disability and promote their health, well-being and quality of life.

 

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Universal Design and Health Promotion (UDHP)

 

Examination of Built Environment Instruments Addressing Health Promoting Behaviors


The UDHP project is a content review of the commonalities and disparities across existing built environment measurement tools which measure health promotion accessibility and community livability. This study identifies subject domain content overlap across instruments, and which domains and instruments are sensitive to accessibility for people with disabilities and other constituent groups, or which require further modification. Information on instrument methodological features, including instrument development methods, research design, and psychometrics are also provided.